Men’s Health Month Spotlight: Epilepsy & Your Well-being

June is Men’s Health Month, a crucial time to focus on your well-being. For men living with epilepsy, this month is especially important, as there are specific health considerations to keep in mind. Understanding these challenges and working with your healthcare team is key to living your best life.

Key Health Considerations for Men with Epilepsy

Men with epilepsy might face unique challenges, including:

• Hormonal Changes (Testosterone): About 4 in 10 men with epilepsy have low testosterone, affecting energy, mood, sexual function, and bone strength. This can be due to seizures or anti-seizure medications (ASMs). Talk to your doctor if you notice changes; blood tests or medication adjustments might be needed.
• Fertility: Some men with epilepsy may have a higher risk of reproductive problems. This can be influenced by epilepsy type, age of seizure onset, or ASMs. If planning a family, discuss concerns with your epilepsy team. Fertility issues are often treatable.
• Libido and Sexual Interest: Stress, fatigue, mental health, or ASMs can impact sexual desire. Fear of seizures during intimacy can also be a factor. Speak openly with your doctor about these concerns; many problems are treatable, and open communication with your partner helps.
• ASM Side Effects: All medications have potential side effects. Short-term effects can include dizziness or drowsiness. Long-term effects might include bone thinning or weight changes. Track side effects in a diary and discuss them with your epilepsy team. Report serious issues like fever or rash immediately.
• Medication Adherence & SUDEP Risk: Consistently taking your ASMs is vital. Missing doses can lead to breakthrough seizures and increases the risk of Sudden Unexpected Death in Epilepsy (SUDEP), especially for those with uncontrolled seizures. If you struggle with your medication schedule, talk to your doctor about strategies like alarms or different medication forms. Ask about your SUDEP risk and consider seizure alert devices, especially for night seizures. If seizures aren’t well controlled, consult an epilepsy specialist at an epilepsy center.

Your Health, Your Future

This Men’s Health Month, take charge! Understanding the connection between your gender, epilepsy, and overall health is crucial for better seizure control and quality of life. Use this time to list any concerns and share them with your primary care doctor and epilepsy providers. Your healthcare team is there to support you – the whole person.

Source: Epilepsy Foundation | June 2025